A Mixed-Methods Analysis of Family Perceptions of Neuropsychological Evaluation and Resources for Pediatric Brain Tumor Survivors

Abstract Objective Neuropsychological testing is often recommended for pediatric brain tumor survivors, yet little known about perceptions of and resources. The purpose this study to examine survivor caregiver neuropsychology resources identify factors associated with receipt neuropsychological testing. Method Survivors their families (N = 55) completed questionnaires on demographics family functioning. Neurological Predictive Scale was used rate treatment intensity expected impact Chi squares logistic regression were the associations between demographic, disease, Qualitative interviews 25) a subset coded thematic content analysis multicoder consensus process high inter-rater reliability (kappas .91–.93). Results majority survivors received more likely receive if they younger caregivers had less than college education lower income. Qualitatively, identified neurocognitive concerns. Some reported that helpful in clarifying deficits or gaining accommodations, while other difficulty recalling results barriers services. To mitigate deficits, implemented metacognitive strategies advocated at school. Families desired around transition adulthood opportunities connection survivors. Conclusions Many valued insights from services room further improvement address ensure accessibility comprehensibility findings.